You can find information on NLCA data items, methodology, data flows and information governance available for download in the section below. For queries that these documents don't answer, please contact us at NLCA@rcp.ac.uk
How data is collected in England
In England, lung cancer clinical teams record patient and treatment information in their hospital computerised system and submit a subset of this information to the National Cancer Registration and Analysis Service (NCRAS) at Public Health England. This subset is known as the Cancer Outcomes and Services Dataset (COSD).
The CancerStats portal (N3 connection required) is available to clinical teams to look up real-time reports on the quality of their COSD submissions. Within the portal there is a dedicated area showing NLCA benchmarked results for data completeness and local performance. Contact details for the NCRAS regional liaison managers can be found on the COSD website. Alternatively, clinical teams can contact the COSD helpdesk for further information.
How data is collected in Wales
The processes to collect, record, extract, validate and quality assure the data carried out in Wales, differ from the processes carried out by NCRAS. The dataset submitted for analysis by Wales differs from the English dataset, due to differing informatics system infrastructures.
The Information Specialists at the Wales Cancer Network extract the data validation reports from a cancer information system called Canisc and send to the six Health Boards on a quarterly basis. Health Board cancer service teams validate the data items within the extracts required for audit submission to ensure data completeness. Each Health Board has lead clinicians that review the validated data and clinically sign off the extracts before submission for analysis.
Requests for secondary use of data
The secondary use of published NLCA data is strongly encouraged, for the purpose of research and quality improvement in lung cancer care and outcomes for patients.
Access requests to unpublished NLCA data in the first instance should be directed to DataSharing@hqip.org.uk
|Data Sharing Policy 2021||To ensure any requests for data sharing, including publication on websites, conforms to the relevant laws and national policy for data protection.|
|NLCA Data Flows 2021||A description of how data moves between organisations|
|Annual Report 2019 Analysis Methodology||Details of the methodology used to analyse the results for the 2019 Annual report.|
|Key Data Items for Annual Report 2020||Description of the key data items for the annual report published in 2020.|
|NLCA Indicators for Annal Report 2019||Description of the indicator measures and standards for the annual report published in 2019.|
|Key Data Items for Annual Report 2019||Description of the key data items for the annual report published in 2019.|
|NLCA Data Protection Impact Assessment||A template to ensure that the NLCA complies with data protection obligations and meets individuals’ expectations of privacy.|
|Analysis Methodology for Annual Report 2018||Details of the methodology used to analyse the results for the 2018 Annual report.|
|NLCA Trust First Seen algorithm||A description of the algorithm used to allocate lung cancer cases to individual organisations for the purpose of cohort analysis (updated August 2018).|
|NLCA Data Flows 2018||A description of how data moves between organisations.|
|Key Data Items for 2018||Description of the key data items for the annual report published in 2018.|
|NLCA Indicators for 2018||Description of the indicator measures and standards for the annual report published in 2018.|
|BTOG Roadshow TNM v8.0 slideset||The NLCA expects trusts to collect stage data according to TNM v8.0 from 1st January 2018.|
|Lessons learnt - data improvement for the NLCA||The 2016 NLCA Annual Report identified approx. 6,000 extra cases of lung cancer. This paper gives details of the work done to understand this increase.|
|Analysis Methodology for Annual Report 2016||Details of the methodology used to analyse the results for the 2016 Annual report.|
|NLCA indicators for Annual Report 2017||Description of the indicator measures and standards for the annual report published in 2017.|
|NLCA key data items Annual Report 2017||Description of the key data items for the annual report published in 2017.|
|NLCA FAQ||Frequently asked questions about the National Lung Cancer Audit.|
|NLCA UPCARE tool 2021||A protocol which describes the key features of the NLCA.|
|Covid-19 Outlier Restart Policy for England||This policy provides explanations on how to restart and complete the English outlier escalation process which was paused during the pandemic.|
|Covid-19 Outlier Restart Policy for Wales||This policy provides explanations on how to restart and complete the Welsh outlier escalation process which was paused during the pandemic.|
|Lung Cancer Clinical Outcomes Publication (LCCOP) outlier policy 2021||This policy provides explanations on how to complete the outlier escalation process for the LCCOP audit published in 2021|